Ankylosing Spondylitis Please Read

[reinke]

is what i have. i have had major lower back and hip pain for over 5 years now. it has gotten the point where i have a hard time walking most days. i wake up and take 3-4 vicodin and 2 antiinflamatory every single morning just to move. i was diagnost with the disease this morning and the outlook is not well. it is a disease where my lower vertabrae are fusing together and my pelvic bones are swelling to the point that i have multiple hairline fracture all over. there is no cure and the treatment is life threating. my doctor wants me to start a experimental drug called enbrel. the only thing is it can and will compromise my immune system leaving me open to catch anykind of bacteria very easily. so it either i keep taking the pills the way i have been for the last 5 years and further damake my kidneys and deal with the pain i have on a constant basis or i take this new shot once a week and risk dieing from a lack of a immune system.

i know this is long but people i wish i was joking. i have been in tears since 10 a.m. when my doctor told me this. i have a 2 year old, a wife, just bought a truck and a house. my doctor said the first 10 years are very critical. and i was a ass and thought this pain was from the work i used to do. so because of my ignorance there is a very likelyhood that i will either end up crippled or dead very soon. it wouldnt be so bad if i was 23. or if more people had this disease. only .1 to .5% of the world population have it and it is genetic but no one else in my family has it. so i am the host and could have passed it on to my son. that is the absolute worst part.

[Forevrbumpn]

that sucks man, Iam sorry

I would do the treatment, over 3-4 vics a day, andwhatever else you gotta do, it might helpyou man

Makes me think of my dad before he passed away, I mean, he had cancer in a few different places, diabetes, and a brain tumor, but he went thru hell for 5-6years before finally giving up ( this is completely different-) but I found out when he died, that well Iam concer prone, my sister just recovered from 400days in the hospital for cancers in 4 different spots as well, and while in the hospital, Drs screwed her up, fed her thru a tube that didnt make it to her stomach, and food was being pumpe in to her linings- makes me so scared to see what will happen to me next

I feel for ya man

[reinke]

i do want to start the treament but i have a kid. i would have to have a sterile enviroment. i would be able to be outside much. i dont want t to put my kid thorugh that shit. he needs a father not someone who looks through a window and watches him play.

[Namosh]

Man, I'm sorry to hear this.....Be strong for your family. Don't give up....you never know what His plan is.

[B Slaps]

day care ftw...... well until your better

[reinke]

i will never use daycare. we did when he was younger we went through the state and found a private ladt. she did it out of her home. i went to pick my son up one night there were like 15 kids. in ohio a single caregiver canonly watch 5 max. she was passed out on her recliner. i kicked that bitch in her shin and told her i am taking my son. she said sorry she passed out from her heart medicine. and B i will never get better there is no cure for this shit.

[finkster]

wow that sux bro...try to stayt positive and beat this thing...

[MickyMcD]

Ah come on man, that's not fair. I wish you all the best, that is terrible news. I sincerely do hope that you can manage, if not recover from, you illness. My regards to you and your wife and son. I am sorry to hear this.

Cheers,

Mick

[josh19866914]

damn nigga that sucks..... i wouldnt know what to do in your situation.... for real...

keep your head up

Edited September 7, 2008 by josh19866914

[reinke]

thanks guy. i really appreciate the supprot. today i had to get tested for HIV, hepatitas a,b,and c, TB, and HL-B27 it is a protein. it sucked bad. i hate needles. yesterday i had my last show of the season and fucked up everyones day with this news.